Do you have a family history of thyroid cancer?

My mother had a small goitre removed when she was 58. My sister had to have nodules removed in April 2000. She is 55.

When were you diagnosed?

When my thyroid was removed in 1992, a section was sent to pathology and cancer was detected. I was devastated and wondered if I should have had my thyroid removed earlier, in spite of the fact that my doctor said there was no need to remove it until it bothered me.

What form of cancer did you have?

Hurthle Cell Carcinoma.

What symptoms did you experience?

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What treatment did you have?

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How did the treatment affect you?

I had to stop taking thyroxine before having radioactive iodine treatment and go on an iodine free diet, usually 3-5 weeks before.

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What was your recovery like?

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Have you had follow up scans and what are your experiences?

I have had numerous scans, MRI’s etc., indicating that the cancer had spread.

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How are you feeling now?

My feelings sometimes seem like a yoyo.

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I have had two radioactive iodine treatments and each time the thyroglobulin has gone down compared to pre-treatment levels.

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